Pregnancy, MS & Me

Pregnancy, MS & Me

As of starting this post I'm almost 38 weeks pregnant and over the last few weeks or maybe a month or so, my level of excitement has decreased or was it even there to start with?  Maybe its the thought of the impending birth of this tiny human or the thought of looking after said tiny human or even how life will NEVER be the same again, I don't know.  I think even the whole thought of coping during the birth and afterwards and having MS scares the crap out of me.

Read More

My diagnosis has taught me a lot...

My diagnosis has taught me a lot...

...about people.

"How are you?"

Seems like a question that would be a reasonable one to ask right?  That depends if the person asking is actually interested in your real answer.  It happens frequently, someone askes "So how have you been?" and if your truthful answer is a bit longer then "Oh I've been great thanks" suddenly they aren't interested anymore and their eyes kind of glaze over.  So now I am always "Great thanks".  I don't know if its just fake concern and they are doing it so they appear to care but I will tell you, if you don't want to know the truth, don't ask in the first place.  I will not always be 'great' and my not so great days might not be your typical bad day.

Read More

A Letter to MS

A Letter to MS

Dear MS,

I'm not sure if that greeting is appropriate because you are not dear to me, you were an unexpected and unwelcome visitor that has turned up but sadly you will never leave.  The day I found out you were coming to stay is a day I  will never forget, that is only if you permit my memory to serve me for years to come but I guess it is for that reason why I have chosen to write this.  It was on that day, the 4th of April 2013, that I was told about how you were residing in my brain and on my spinal cord in the form of several lesions.  When I saw you for the first time I knew you were the reason for my stumbling, falling, pins and needles, numbness and vertigo.  I was so mad at you.  Why did you have to come and stay with me?  

Read More

Suicide and MS

Suicide and MS

This is a blog by Jennifer Digmann, she felt inspired and encouraged by my recent blog on Euthanasia  to create the dialogue needed for such a post by using her own personal experiences and views.  It features a real life article on a woman who takes her life after living with MS for almost 40 years and Jennifer talks about her views on suicide and MS.

Read More

Being a Nurse with MS

Being a Nurse with MS

People would assume that being a nurse I know everything there is to know about MS,   truth be told I know just about as much as any other person who was just diagnosed with MS.  The only difference in the beginning was that I had a basic knowledge of MS and it wasn't the warm and fuzzy type of knowledge.  Before I even went to my appointment with my GP I knew what the results said.  I was a typical nosey nurse and got a copy of my MRI results and had a read and I came across the words 'lesion' and 'demyelination' so i knew it was MS.  There is some irony I have found with being diagnosed with MS and that is in my final year at University I did a presentation about Multiple Sclerosis, little did I know is that I was researching what my life would one day be.   

Read More